The Oncology ward is sterile in a way that other areas of the hospital are not. Flowers are not permitted. Hand washing stations are everywhere, including just inside the entrance doors. HEPA filtered air flows through the entire floor. It is remarkably quiet. The occasional slip of noise escapes individual rooms as you walk the corridor. The doors to these rooms are decorated with scrapbooked posters that introduce the family member who is fighting cancer within. It is clear many of the patients here have been residents for a long time. There is a family kitchen and a playroom stocked with toys for the younger kids and books for children of all ages. The rooms are comfortable. There is a computer (Apple - woot!), a television (with cable channels), and a small cd player. The nurses are caring, efficient, and respectful. Not once has someone entered our room without first knocking, even when the door was partially open. The doctors are kept abreast of the patients in the ward. Just this afternoon, while taking Henry for a bit of a walk around the facility (confined to the 10th floor), we met a doctor we hadn't seen before and she already knew Henry's name and his current issue (neutropenia).
I've met and chatted with two other moms since we arrived. One has a son who has been in the ward for just over a year. His last day is next Tuesday. A small party is being planned for tomorrow night. This mom is eager to talk about her son's condition. She openly expressed a wish to meet other moms who had children with the same soft tissue cancer her son was fighting. The other has a son who was only recently diagnosed. He is getting a bone marrow transplant next week. This mom is quiet, reserved, and has the look of someone who is still suffering from shock. Her other son is an exact match so by all rights, this transplant should go smoothly.
7 comments:
My sister was a semi-permanent patient of an oncology ward in Ca. when I was much, much younger and it's good to hear how much the places have changed. I can tell you there were no computers (apples!), no scrapbook posters, etc. I still get chills when I think about the grayness of the place... and the quiet. Eek. I'm glad to hear they are taking such good care of your little man. Maybe he can save some of the paraphernalia and be a hospital patient for Halloween? I'm always looking for easy costumes! :)
Well they do have hospital pjs just down the hall...
This was so well written, Christie. What a look into the lives of others.
Best wishes...and that you're out of there soon!
I'm a friend of Megan's and found your link from her site. We are former residents of Hotel Doernbecher and still have many friends who are in and out of there. Our daughter battled a brain tumor (rare, high risk, agressive, all those other bad words) and died in April 2007. You can read our story at www.lillianharris.blogspot.com. If you want to chat with someone who has walked a similar path, please email me. walkingwithangels [at] gmail [dot] com
I used to work at a medical camp that held an oncology week. Since I was a junior counselor my cabin was the one full of eight and nine-year-olds who were in full remission. They were just normal, giggly, healthy girls--so these are the girls I'm remembering when I think about Henry and continue to think healthy thoughts for him.
Our love to you guys! Hopefully, you'll be out of there soon!
Give Henry hugs and kisses for us, we are worrying about him!!!
Again please let us know if you need anything! Food delivery, dogsitter, someone to feed the cats, run errands... whatever.
Love you guys,
Bobby, Jyla and G Man.
Post a Comment